Regional communication within and across health organisations

The R&D Project

1. Objectives

The health care sector is intrinsically heterogeneous in its organisation. There are distinct, formally independent, organisations or institutions that take part in the delivery of health services: municipalities, counties, hospitals, private health providers, (private and public) laboratories and private pharmacies. Yet, the patients – the proper ‘value chain’ – cuts across these organisational boundaries. There are huge problems with ensuring effectiveness through this process as a whole of receiving different health services. These problems are essentially about finding ways to communicating relevant clinical knowledge within and across the different organisations which make up the health care value chain. This addresses explicitly the fourth of VERDIKT’s calls on ‘communicating organisations’.

The problems with inter and intra organisational communication, knowledge sharing and collaboration give rise to notions like ‘continuity of care’, ‘shared care’ or ‘integrated care’. Reiterating prevailing thinking in organisation and management science, health policy initiatives in the Western world emphasise strongly the importance of dismantling ‘vertical’ boundaries in favour of ‘horizontal’ processes of work and sharing of knowledge.

Industrially, we are in the midst of dynamic structural changes fuelled by ‘integration’ through national and international mergers and acquisitions alongside structural changes in the market through regionalisation of tenders.

The notion of ‘seamless integration’, then, in the context of health care has a deeply ambiguous meaning. It marks the political and ideological commitment towards integrated care, i.e. service integration as experienced by individual patients. On the other hand, it is simultaneously used in the much narrower sense of the technical integration of relevant clinical information systems.

Our overall aim is to generate

G0             Operationally relevant knowledge of product and process innovation to support health service delivery across the value chain to increase efficiency and improve quality of health delivery to patients;

More specifically, our aims are:

G1             Identifying and testing principal strategies and technologies for technical                                integration of the underlying information systems

G2             Exploring new business models supporting integration

G3             Developing methodological guidelines for management of integration                                     projects

G4             Establishing experience forum for vendors, health workers and researchers around challenges of integration

G5             Publishing in Int. conferences/ journals: 2/0 (2008), 2/1 (2009), 4/2 (2010), 4/3 (2011)

2. State-of-the-art

There is literally a jungle of information systems supporting healthcare providers today. This abundance of different information systems is the mirror image of the enormous variation in healthcare work along level, geography, professional groups, agencies and specialization. Given this large number of partly overlapping, complementary and interdependent information systems, it is hardly surprising that considerable efforts have been poured into supporting a more process-oriented service through tighter integration of underlying information systems[1].

Yet the actual realization of the widely recognized potential of ICT has proven notoriously difficult to achieve. The implementation – when “implementation” is recognized to extend well beyond the mere technical realization – of information systems in hospitals contain a disturbingly tall number of partial or complete failures. The appreciation of how, to what extent and in what form, the development and subsequent introduction of information systems raises organizational, political, legal and technical challenges, is slow. No systematic overview exists, but the emerging picture strongly suggests that under-estimating or misconstruing the non-technical issue account for a very significant portion of failures of information systems in healthcare[2].

This growing awareness of the importance of non-technical issues focuses predominantly on development and use of new applications, i.e. information systems aimed at replacing or supporting manual or paper-based routines. Less attention is devoted to the integration of information systems. This is unfortunate given the high expectations tied to integration. A key reason for the lack of success for many health information applications is the way these, at best, provide local or sub-optimal effects, but fail to achieve benefits for the work processes as a distributed, collective whole[3]

Accordingly, the integration of healthcare software systems has remained one of the most prominent issues in healthcare software development[4]. Integration is expected to automate the medical processes, such as patient admission, transfer and discharge, ordering of laboratory and radiological examinations or medication.

An integrated solution is supposed to give the physicians easy access to data from multiple information sources, thus providing a complete picture of the patient/client’s medical history[5]. The multiple information sources are accessed seamlessly from a single point of end-user interaction[6]. A completely integrated IT solution is a clear goal, both within hospitals as well as between the different organisational levels in the healthcare system:

“A scalable I-EHR [integrated electronic health record] would provide the means to access all available clinical information, at a corporate, regional, national or even international level” [7]

However, despite the high aspiration of integrated solutions, Berg (1998: 294) fairly accurately characterises the situation when he maintains that “fully integrated [PICS] …is hard to find” and reiterated in the action plan for Norwegian health care[8].

One cause is that many software products have been built and acquired from heterogeneous sources during a long period of time, and the systems have differences in implementation technologies and architectures[9]. Other causes may be ascribed the relatively autonomous domains of the Norwegian healthcare system (hospitals, primary care, nursing homes and home care services) which by its autonomous character pose several challenges (technically, legally and organisationally) to effective integration.

The IT Committee of the Secretary of State (“Statssekretærutvalget for IT”) published in 1996 a report called The Norwegian IT-road Bit by Bit (“Den Norske IT-veien Bit for Bit”) which also underlined the envisioned possibilities of the ICT in the healthcare sector:

“The healthcare services will be improved and the quality increased by the coordinated introduction of information technology in all segments of the healthcare action chain. Local, regional and national health networks will strengthen cooperation and resource management in the healthcare sector”[10]

 “[T]he present flow of information is unsatisfactory. Nurses in home nursing services and nursing homes often do not have access to essential information from other service providers about their patients”[11]

In summary, there is thus a broad consensus about the aim of improving inter- and intra-organisational communication in the health sector as pictured in figure 1:

 

General practitioner /

Emergency ward

 

Home care service

 

Nursing homes

 

Figure 1. Flow of information between the different actors in the healthcare sector

The approach, however, to how to achieve improved communication flows is fiercely debated. There are two, principal strategies employed as characterised in table 1 below:

Monolithic

Heterogeneous

Centralised

Decentralised

One principal vendor

Multiple vendors

Relative stability in external environment

Fluctuating environment

Table 1. Characterisation of the two, principal approaches to improve communication flow

Our proposed research project explores concrete manifestations of these strategies as they, starting from the left/right hand side of the table, are challenged to move in the opposite direction.

3. The Research Challenge

Table 1 outlines schematically the two – operational as well as analytic – challenges around which our project is organised: strategies, technologies and methodological guidelines for developing and deploying seamlessly integrated health information systems. To better ground and methodologically restrict our aims, we have consciously targeted two distinct empirical settings (hospitals; regions) that traditionally have employed very different strategies to integration (tight and loose, respectively).

A. WP1: From monolithic to heterogeneous regionalisation

Traditionally, information systems within hospitals have been tightly coupled. Each of the 85 Norwegian hospitals made individual contracts with the Norwegian vendors (some international as well) health information systems. From 2002, the central Government undertook the ownership of the country’s 85 hospitals from the counties. The former five health regions were replaced by five regional health enterprises, aiming at running the hospitals as private enterprises. The former autonomy in the hospitals is thus replaced by more centralised control, subsequently resulted in a new kind of demands and challenges.

An important strategy, employed by several of the regional health enterprises, has been to achieve improved regional communication by standardising – thus privileging one – on one of the vendors (see Box 1 and activity A1), as e.g. Dips enjoys in health region North and Siemens in health region Middle.

Box 1

 

Regionalisation as privileging one vendor

 

Prior to the construction of the regional health enterprises, there was a significant variation in the choice of vendors for EPRs, laboratory systems, PAS, radiology etc. in each of the regions. This was a natural situation given that the different hospitals in a region enjoyed significant autonomy in defining its technology strategy.

With the establishment of regional health enterprises, this changed radically. The responsibly of the technology strategy was centralised to the health region. This has rapidly resulted in a situation where there has been enforced uniformity in the choice of e.g. EPR in the whole region. As one IT managers in one of the regional health enterprises states, “when all 10 other hospitals in the region has EPR from vendor [X], it is obvious that also the regional university hospital [bigger than all of the others together] should have EPR from vendor [X]”.

Given the significant variations in needs and preferences, the dilemma currently facing most of the regional health enterprises is whether the preferred vendor – chosen for arguments of economy of scale and standardisation – is able to satisfy the full range of requirements.

 

Health regional enterprises today, then, need to respond to technological and organisational changes to maintain its ambition of seamless integration. We emphasise the increased unpredictability in the Norwegian healthcare market, the increased scale of vendors and customers, and finally standardisation of information systems and practices within one region (see Box 2 and activity A2)

Box 2

 

Dynamically changing business environment

 

The healthcare industrial market in Norway is dynamic, unpredictable, implying that vendors have to face an uncertain environment. The three current EPR vendors for hospitals are a result of acquisitions and mergers. These vendors have increased they size, strength and market position through mergers and industrial acquisitions nationally as well as internationally. This has resulted in an international refocusing. Siemens, on of the vendors acquired a major US based company (Shared Medical Systems) within the health market and is currently one of the largest vendors within health care and IT worldwide. TietoEnator is the biggest vendor in the Scandinavian market and finally Dips, the third of the three major vendors in the Norwegian healthcare sector has explored the possibilities for new markets in the Baltic (Latvia) and in Eastern Europe (Poland).

Moreover, the regionalisation of framework agreements and tenders imply that a change of systems in one health region does not just include one hospital and one system, but will include all of the region’s hospitals and often many different systems in order to be part of an overall integration strategy. As one of the managers at Helse Nord RHF explains, “We see a shift from many small to a few large contracts. These changes are extremely dramatic for vendors – it is an all-or-nothing competition”. The Regional Health Enterprises demand standardised and common information systems in the health region, making new demands on availability, robustness and across-hospital integration so, the manager continues, “For each specialized field [Bloodbank, Microbiology, etc], we want the same system in the whole region [North Norway], and preferably in one database”.

The activities in WP1 comprise of:

A1       Participatory action research in either Health Region North or Middle to explore the strategies of either Dips or Siemens, respectively, of how to accommodate more heterogeneity in the region

A2       Participatory action research with the international standardisation of laboratory modules from either Dips or TietoEnator

            A3       Test and evaluate strategies and technologies

            A4       Formulate methodological guidelines for project management

B. WP2: From heterogeneous to monolithic/interlocked regionalisation

Traditionally the communication between hospitals and primary care has run by ordinary mail. The general practitioners have referred patients by sending referral letters and upon discharge of the patients, they have received discharge letters. They have also requested laboratory tests by filling out a requisition form which they have sent to the hospitals laboratories, and got the response on email.

This traditional, asynchronous communication form has gradually been supported by message-based ICT. Electronic laboratory results and discharge letters have proven to be relatively successful compared to the traditional way of interaction.

A condition for success for the new electronic services has been an augmentation of the general practitioners’ ordinary routines and integration with their GP-based EPRs. Some GPs have warned that electronic requisitions of laboratory results imply an increase in their workload compared to the traditional paper-based requisition form.

Overall, the implemented electronic collaboration tools (asynchronous requests/response) represent no far-reaching change in work-routines. An incoming request, both within hospitals and with the GPs) don’t impose an immediate action. Work practices remain largely constant and the interacting systems are relatively independent of each other: the systems are loosely coupled.

The current ambition of improving the information flow in Norwegian health care makes a shift in integration strategy from loosely to tightly coupling regionally (see Box 3 and activity B1).

Box 3

 

Stronger dependencies between hospitals and GPs

 

New interactive services are demanded between hospitals and general practitioners. For instance, Well diagnostics are current involved in a large integration project with UNN where the goal is to replace all paper-based routines related to requisition, reception and management of laboratory referrals. The key point here is tracing. The general practitioner should receive updated information about the analysis. Moreover, the system is intended to support a two-way interactive communication channel between the GPs in general practice and the specialists at the hospital where they given an informal tool to communicate. For their part, UNN sees this project as the opportunity to streamline the information flow, reorganise the work routines and thus improve efficiency in their laboratory services. In this way, they need a tighter integration between UNN and general practice.

Secondly, Norwegian health care authorities have stimulated and initiated several electronic booking projects between hospitals and primary care. Patients will be allowed to choose which hospital they would like to go to and the date and time which suit them. This requires a tight synchronous interaction between the hospital and the general practitioners. The hospitals must have free “hours” available (tightly coupled to both the hospital’s PAS system and its EPR). Hospital physicians must have organised their own time to fit with this hours and the GPs must book appointment according to specific rules. In sum, the interaction is strongly regulated, thus tightly integrated in both a technical and organisational way. Both UNN and Well diagnostics are closely involved in this project: UNN as a user and Well as the vendor as they recently has acquired GetMedic AS, one of the principal vendors of booking systems in Norwegian health care.

 

A characteristic an important aspect of the regional integration efforts is that the number and type of stakeholders are numerous. It is no longer only a hospital – GP interaction, but integration also includes nursing homes, homecare services and pharmacies (see Box 4 and activity B2).

Box 4

 

Multiple actors involved in regional integration

 

New demands for efficiency and quality make it pressing to implement totally integrated systems in all the different sectors in health care. A relevant example is the national virtual medical card (also denoted “core journal” by the vendor Profdoc) aiming at containing all information about any patient’s use of medications. This presupposes integration of EPRs in hospitals casualty clinics, general practice, nursing homes and the homecare services. The virtual medical card is supposed to ensure that the different healthcare providers provide the patients with consistent medication. For instance, nursing homes and homecare services often lack information about what medication the patients are using. Currently, most of the vendors in this research project participate in a regional development project in Helse Nord RHF around this issue. This presupposes a huge integration challenge as medication information in the virtual medial card is supposed to consistent with all the EPRs located in the different healthcare sectors: homecare, nursing homes, general practitioners and hospitals.

The activities in WP2 comprise of:

B1       Participatory action research at Well Diagnostics and among its collaborating partners (Dips and Profdoc) and users (hospitals) in order to identify strategies for establishing interactive services as well as suggest how organisational routines may be changed in order to support the new services.

B2       Participatory action research (among the vendors, in hospitals, general practitioners, nursing homes and homecare services) targeting the use of core journal to capture, share, and use clinical information (medication) across institutional boundaries.

B3       Test and evaluate strategies and technologies for regional integration

            B4       Formulate methodological guidelines for project management of regionally                                     integrated information systems

4. Research Method and Results

The project is planned to start August 2007 and run for four years, August 2007 – August 2011.

The main points of the project design and general approach to the project are the following:

  • Sub-projects are carried out in user and vendor organisations, focusing on improving integration strategies among healthcare systems. This involves cooperation between the users, vendors and research institutions.
  • Division into two work packages, one for each of the two main themes outlined above. Each work package has researchers who are responsible for coordination and progress.
  • A common vendor/user arena that functions as a meeting place for vendors, users and researchers. The meetings at arenas will focus on various topics and themes in rotation. The vendors and the user organisations will themselves choose if they want to be active in all themes, or if they want to limit themselves to a few.
  • A forum for the participating vendors where themes may focus on strategies for integration between systems from different vendors and models for increased collaboration.
  • A common researcher arena that supports cooperation between the participating research groups, and across the chosen themes, to insure the overall integration between the themes (work package) and the vendor/user arenas. This arena will also deal with contributions to educational programs, and the development and implementation of a publication strategy for the project.

Based in participatory action research[12] we want to approach the project also through qualitative, in-depth and longitudinal studies, to better understand the many facets of systems development in general and integration in particular

The research participants have many years of project-experience with ICT in health  research, focusing on co-generative learning and close collaboration with demanding participants through for example the KVALIS-project[13] and NSEP[14].

The main research activities to be utilized are:

  1. Specialist preparatory work. Literature review. Objective: Clarification of the central theoretical positions and research gaps on each theme.
  2. An introductory meeting for each work package at the vendor/user arena where experience is exchanged, the actual challenges facing both user organisations and vendors are described, research questions are identified and outlined, and the design of case studies is determined. Objective: Development and determination of research gaps and questions.
  3. Four research studies from the participating organisations. Objective: At least 3 well documented studies available for comparative analysis.
  4. Regular meetings at the vendor/user arena to present preliminary results, to adjust focus and data collection in the case studies, and to promote discussion to transfer results relating to the challenges faced by individual companies. Objective: Quality assurance in relation to relevance for the vendor and user organisations. Further empirical evidence. Exchange of experience and cross-fertilization across organizational boundaries.
  5. Regular meetings at the research arena. The aim is to obtain new, important theoretical as well as methodological contributions to the work, quality assurance of the case studies, and to develop strategies for publication, as well as transfer of insights to educational programs. Objective: Research quality, publication, and contribution to educational programs.
  6. Publication of results in international journals and other media, both text, and hypermedia, for example through the poplar science web-portal Forskning.no. For the general audience of software companies, we will organize seminars and experience forums.

5. Project Organization

The owner of the project is Well Diagnostics, with the head office in Tromsø and a branch in Oslo. Well Diagnostics is completely dedicated to the healthcare market. An overall goal is to create a better and improved patient flow through effective and secure interaction between the different levels in healthcare. Through its portfolio of complementary integration products, Well Diagnostics collaborates and interacts with the other major vendors referred to in this application (Dips, TietoEnator, Siemens and Profdoc). This makes Well Diagnostics an ideal project owner for this research project.

For the national partners, letters of intention are attached to the application. For the local partners and for the user organisations, we have got either written or oral acceptance for their contribution. The project comprises the following partners:

Vendors:

Organisation

Role and contact person

Well Diagnostics (project owner)

Strategies for integrating systems from heterogeneous vendors

Contact person: Rolf Dahl

National partners/contributors

 

Siemens medical

Develop business models and strategies for regional integration

Contact person: Anne-Mai Olsen

Dips ASA

Develop business models and integration strategies

Contact person: Tor-Arne Viksjø

TietoEnator

Strategies for integration and modularisation

Contact person: Sigurd From

Local partners/contributors

 

Profdoc

Develop overall strategies for integration between specialist- and primary care

Contact person: Øyvind Ødegård

Visma Unique

Models for integrating homecare- and nursing care systems with hospital and primary care systems

Contact person: Lars Espejord

Jupiter System Partner as

Strategies for integrating their Medical Genetics system with the EPR products from Dips, Siemens and TietoEnator

Contact person: Odd-Halvard Bjørnstad

 

User organisations

Organisation

Role and contact person

Universitetssykehuset Nord-Norge HF

Methodological guidelines for management of integration projects

Contact person: Magne Johnsen

Rikshospitalet – Radiumhospitalet HF

Develop strategies both in a technical and organisational perspective to achieve our goal of a complete electronic patient record.

Contact person: Hallvard Lærum

Helse Bergen – Haukeland Universitetssykehus

Integration between different large-scale EPR system from different vendors

Contact person: Eva Møller

Helse Nord IKT

Methodological guidelines for management of integration projects

Contact person: Bengt Flygel Nilsfors

St Olavs hospital

Integration strategies for virtual electronic medical cards

Contact person: Olav Sletvold

Sentrum legekontor

Seamless information flow between specialist- and primary care

Contact person: Dag Nordvåg

Kroken sykehjem

Access to medication lists for old and chronic patients

Contact person: Ingebjørg Riise

 

Research partners

Organisation

Role and contact person

University of Tromsø, Institute of clinical medicine,

Department of telemedicine,

Conduct action research studies in organisations and supervise PhD candidates

Contact person: Associate professor Gunnar Ellingsen

NTNU, Department of Computer and Information Science

Conduct action research studies in organisations and supervise PhD candidates

Contact person: Professor Eric Monteiro

Management

The project leader is Associate professor Gunnar Ellingsen, Dept. of Telemedicine, University of Tromsø (UiTø). He is head of the Department of Telemedicine, which organisationally is affiliated to the Institute of Clinical Medicine, University of Tromsø. He also holds a part-time position at Norwegian Univ. of Science and Technology (NTNU) / Norwegian Research Centre for Electronic Patient Records (NSEP).

The project is to be managed at two levels, a strategic and an operational. Well Diagnostics as will be involved together with Ellingsen and Monteiro at the strategic level. The operational level is associated with the work package research themes, which is lead by a work package leader and coordinated by a steering group consisting of representatives from the participating organisations.

Gunnar Ellingsen is part of an extensive network of research activities in Tromsø. A key resource here is Gunnar Hartvigsen (Dept. of Computer Science, UiTø) who for several years has managed a research group within the field of medical informatics and electronic patient records. As Gunnar Ellingsen is heading the Department of Telemedicine, he also has close contact with, and work with the Norwegian Centre for Telemedicine (NST) located in Tromsø.

Gunnar Ellingsen is also member of the leader group in “Tromsø Telemedicine Laboratory” (TTL), centre for research driven innovation (SFI), which was granted 90 MNOK from the Norwegian Research Council. The total budget for TTL is 180 MNOK over an 8 year period. Both Well Diagnostics and Dips ASA is part of, and will contribute financially to TTL as it is planned that Ellingsen will supervise one PhD student financed by Well Diagnostics and one PhD student financed by Dips ASA.

Ellingsen has also close and long-lasting collaborative ties with NTNU/ NSEP in general and the other principal researcher in the project in particular, Professor Eric Monteiro (who is also part of NSEP). Monteiro has been involved in several research projects on ICT in health care over a time period of 15 years. He has published extensively in international academic journals on health informatics more broadly, but with a focus on issues of integration. Monteiro is also involved in the NFR Verdikt funded project FIPP on flexible integration in the public sector. Monteiro will interact closely with Ellingsen throughout the lifespan of this research project.

In sum, the organisation of the project will draw on and contribute to the synergy with the broader research communities at the two principal nodes, UiTø/TTL and NTNU/ NSEP.

6. International cooperation

Institution

Main focus

Contact Person

Erasmus Univ. Rotterdam

Implementation of ICT applications in health care (the EPR in particular) from a socio-technical perspective

Professor Marc Berg   PhD Roland Bal

The University of Edinburgh

Implementation, and standardisation of information and communication technologies in organisations

Professor Robin Williams

Cambridge University

The development, use and management of information and communication technologies and systems.

Professor Geoff Walsham

Univ. of California

Studies of standardization and evidence-based medicine and how change occurs in contemporary health care

Professor Stefan Timmermans

Umeå University

Standardisation and information infrastructures

Professor Jonny Holmstrøm

London School of Economics

Expanding organisational involvement of IT and the associated shifts in work and employment forms

Professor Jannis Kallinikos

Simon Fraser University

User Participation in Design of Technological Systems

Professor Ellen Balka

Vienna University of Technology

CSCW,, information technology and its influence on the practice and quality of health care within hospitals

Professor Ina Wagner

Copenhagen Business school

Information technology in health care, especially electronic patient records and medical informatics.

Assistant professor Signe Vikkelsø

Roskilde University

Effects-driven IT development in health care, method dissemination and CSCW

Assistant professor Jesper Simonsen

 



[1] M. Hartswood, R. Procter, M. Rouncefield, R. Slack (2003). “Making a Case in Medical Work: Implications for the Electronic Medical Record”. Computer Supported Coopertive Work, no. 12, pp. 241-266.

[2] S.S. Boochever, HIS/RIS/PACS integration: getting to the gold standard, Radiology Management 26 (2004) 16-24.

[3] SHD, Electronic interaction in the Health and social sector “say @”, Governmental action programme 2001-2003. http://odin.dep.no/archive/shdvedlegg/01/04/Sitek046.doc, 2001.

[4] J. Mykkänen, J. Porrasmaa, J. Rannanheimo, M. Korpela, A process for specifying integration for multi-tier applications in healthcare, Int. J. Med. Inf. 70 (2003) 173-182.

[5] M. Tsiknakis, D.G. Katehakis, S.C. Orphanoudakis, An open, component-based information infrastructure for integrated health information networks, Int. J. Med. Inf. 68 (2002) 3-26.

[6]  S.S. Boochever, HIS/RIS/PACS integration: getting to the gold standard, Radiology Management 26 (2004) 16-24

[7] R. Lenz, K.A. Kuhn, Intranet Meets Hospital Information Systems: The Solution to the Integration Problem? Methods Inf. Med. 40 (2001) 99-105.

[8] Te@mwork (2007) states that: “Integration between clinical systems, laboratory systems and administrative systems today is often poor” (ibid: 15-16). Norwegian Ministry of Health (2004). Te@mwork2007/S@mspill 2007. Elektronisk Samarbeid i Helse- og Sosialsektoren. (National strategy 2004 – 2007 for Norway).

[9] (Mykkänen et al., 2003:173).

[10] SHD, More health for each bIT. Information technology as a means for an improved health service, Action plan 1997-2000. Ministry of Health and Social Affairs, 1996.

[11] (Te@mwork (2007: 20-21)

[12] Jørn Braa, Eric Monteiro and Sundeep Sahay. Networks of action: sustainable health information systems across developing countries, MIS Quarterly, 28(3):337-362,  2004. Special issue on Action research.

[13] www.kvalis.no

[14] http://www.nsep.no/index.php/en